Maddison had a rough day yesterday. When I came in she had a fever over 102 and she ran a fever all day. She couldn’t get comfortable at all so she tossed and turned all day. By the end of the day her eyes were rolling in the back of her head. The doctors decided to remove her central line in her leg and replace it up on her shoulder. They felt that there could be infection there since her body was not reacting to the antibiotics that she’s been on. They also added a third antibiotic on yesterday.
They were alternating Tylenol and Motrin every 3 hours and her fever just wouldn't break. I came in this morning and she looks like a different kid! She has been sleeping most of the day since I got here and is actually able to relax! I’m not sure if it was the line or one of the meds but she hasn’t had a fever all day and she looks like she is on the upswing again.
They have restarted her feeds. They said they hope to have her up to full feeds quickly. She is still on oxygen mostly for comfort. She tends to get on a coughing spell and can’t stop. When she’s not breathing in good her stats tend to drop quite a bit.
Her incision looks good. Just a few scabs but overall it looks clean. They took the stitch out of the last chest tube site yesterday so that wound is still pretty fresh but overall those are doing well. I am heading home this afternoon to spend the night with my older daughter Mackenzie. I haven’t seen her in nearly 2 weeks and I really miss her. We are going on have a “girls night”. Mike is going to come over with Maddi this evening to keep her company. We'll keep ya posted on the updates. We hope to be heading towards recovery at this point so we can get home. We ALL miss everyone being home together.
Ashley
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