Awesome Day!

Today was an awesome day! I was able to hold my Maddi! When I came in this morning she had her chest tube out. I would have just been excited with that news! But it just got better! They took her arterial line out of her leg so I was able to hold her!! They also started her feeds. We did attempt to take her off the oxygen and she did okay for about an hour but then she got on a coughing spell and couldn’t stop so they put her back on.

They are now telling me that she does in fact have pneumonia in the right lung. So really until she gets over that she’s not going to feel very good. They do have her on antibiotics so hopefully that will continue to work over the next few days. So far things are looking up! The antibiotics she has to be on can only be given though IV drip and they want her on them for 14 days. So far we are at day 5 so we will have 9 days of a stay for sure. Hopefully she’ll get to feeling better this week and we might can come home next week. Hopefully! Never know with Miss Maddi!

Just wanted to pass on the awesome news for the day!
Ashley

Starting Feeds

Maddison is having a good day. She has managed to stay of the ventilator and is doing well. She still has some labored breathing from time-to-time but overall she’s holding her own. They have put her on c-pap which is kinda like a high powered jet of air to help pop open her lungs. They are hoping if she gets maximum use of her lungs she’ll take deeper breaths and not have to work so hard.

We were just told moments ago that they are going to start feeds this evening. They are going to start with some pedilite to see how she handles that. Then tomorrow consider mixing some formula in. Her chest tube is FINALLY slowing down. They told us if it continues to drain slowly they will most likely take that out tomorrow! Then I can finally but some clothes on her!

She has had a wonderful nurse today, one of my favorites, TJ who has been taking very good care of her. She even made her bed all pretty and did her hair! That photo is attached. Little by little she is getting stronger. She hasn’t said any words to us yet but she will just stare us down making sure we aren’t going anywhere!

Hopefully I’ll have good news to report on feeding tomorrow!!
Ashley

Maddi is off the vent!

The vent is OUT!! WHOO… They just took Maddi off the ventilator. So far she is doing well. She is breathing kinda fast but otherwise her stats are good. We have our fingers crossed that she will do well. She still has one of the chest tubes still in. Unfortunately it is still draining quite a bit.

They are letting her rest for the rest of the evening. She is on a nasal cannula at 100% oxygen but they are talking about coming down on that tomorrow so long as she has a good night. She got really worn out just by taking the tube out so she is resting now.

Not a long update but a very exciting update! We are moving in the right direction! Hopefully if she wakes up a little more I might get to hold her in the next day or so!

Ashley