Maddison had a quite night last night. Unfortunately when I came in this morning, the nurse said her x-ray didn’t look great. They said it was very hazy on the right side. The doctor came in this morning with an echo machine to see if it was fluid or something else. It ended up being that the lower right lobe of her lung is collapsed. This is the area we always have issues with when she is on the vent.
They went up on a setting on the ventilator that maximizes the pressure going into her lungs in the hopes of getting it to pop back open. They’ve also weaned her down on some of the sedation meds to see if she wakes up a bit she might be able to take bigger breaths. She has started to stir around a bit more, especially when she is getting a diaper change so hopefully that will help.
Her chest tube is still putting out a lot of fluid so they’ve decided to keep that in until it slows down some. So far it seems like it’s going to be another quite day. They said they’d see how her lung looked tomorrow to see if we could go back down on the pressure settings in order to get her off the ventilator.
Keep ya posted.
Ashley
Friday, February 25, 2011
Thursday, February 24, 2011
Keeps getting better!
Maddison is having another good day. She’s finally gotten some of the fluid off of her so she’s not quite as puffy today. They are planning to take 2 out of the 3 chest tubes out today! We are glad about that. They are also weaning her oxygen levels on the ventilator and are in hopes of getting that off of her within another day or two!
She’s been very quiet today, only a few times has she acted like she hasn’t felt good or something has been bothering her. They did tell me that she spiked a temp of 103.4 in the middle of the night and she still feels a tad warm today. They are hoping there isn’t any infection setting in so they’ve done cultures to rule that out or are able to find what they need to treat. Just as a preventative they have gone ahead and put her on antibiotics.
The photo below is Maddi with some of her new “friends”! Mike & I got both girls (Maddi & Mackenzie) matching pink hippos so that Kenzie could know that she can hug the pink hippo whenever she wants to think of Maddi. And she also got a cute little Lamb Chop doll from LAR… very thoughtful! (LAR is Lakeland Association of Realtors, a company my mom works for)
We’ve also received some donations from friends and family. Please know that we are SO grateful for that extra help. It truly is a blessing to know how thoughtful everyone can be in a time of need , we so appreciate it!
I’m sure I’ll have a new update to blog tomorrow! But so far so good!!
Ashley
She’s been very quiet today, only a few times has she acted like she hasn’t felt good or something has been bothering her. They did tell me that she spiked a temp of 103.4 in the middle of the night and she still feels a tad warm today. They are hoping there isn’t any infection setting in so they’ve done cultures to rule that out or are able to find what they need to treat. Just as a preventative they have gone ahead and put her on antibiotics.
The photo below is Maddi with some of her new “friends”! Mike & I got both girls (Maddi & Mackenzie) matching pink hippos so that Kenzie could know that she can hug the pink hippo whenever she wants to think of Maddi. And she also got a cute little Lamb Chop doll from LAR… very thoughtful! (LAR is Lakeland Association of Realtors, a company my mom works for)
We’ve also received some donations from friends and family. Please know that we are SO grateful for that extra help. It truly is a blessing to know how thoughtful everyone can be in a time of need , we so appreciate it!
I’m sure I’ll have a new update to blog tomorrow! But so far so good!!
Ashley
Wednesday, February 23, 2011
Maddison's Second Open Heart Surgery
Maddison came in for her second open heart surgery on the 21st of February. It was a long day, over 10 hours in the operating room but we got through it. Maddison did great and she is recovering well. They did have to leave her chest open for 24 hours just to allow some swelling to go down. Yesterday they were able to close it and she is doing quite well at this point. Today they had hoped to get the chest tubes out but she is still putting out a lot of fluid so they've decided to keep them in for another day or so.
She is retaining a lot of fluid at this point so they went up on her Lasix which allows her to get rid of fluid faster. Her feet are so puffy and big! They look like they could pop! Overall there is not a lot going on today. They are going to take the RA line out of her chest today which is a pretty small line but apparently a big deal to come out so we are happy about that. They will reconsider taking out one or all 3 of the chest tubes tomorrow after the Lasix has some time to work.
They are working slowly on getting her off the ventilator but they can't completely take her off of that until the 3 chest tubes are out. We hope within the next week or so she'll be on her way to waking up. The worst part is not being able to hold her and talk to her.
She is a tough cookie though! She's strong and has a great will to live that's for sure. It always puts a smile on my face when I have a nurse or doctor come in and tell me that she has exceeded their expectations! Couldn't ask for more.
Thank you to everyone who is keeping our family in your thoughts and prayers!
Ashley
Below is a photo of Maddison today, Feb. 23rd with her chest closed.
She is retaining a lot of fluid at this point so they went up on her Lasix which allows her to get rid of fluid faster. Her feet are so puffy and big! They look like they could pop! Overall there is not a lot going on today. They are going to take the RA line out of her chest today which is a pretty small line but apparently a big deal to come out so we are happy about that. They will reconsider taking out one or all 3 of the chest tubes tomorrow after the Lasix has some time to work.
They are working slowly on getting her off the ventilator but they can't completely take her off of that until the 3 chest tubes are out. We hope within the next week or so she'll be on her way to waking up. The worst part is not being able to hold her and talk to her.
She is a tough cookie though! She's strong and has a great will to live that's for sure. It always puts a smile on my face when I have a nurse or doctor come in and tell me that she has exceeded their expectations! Couldn't ask for more.
Thank you to everyone who is keeping our family in your thoughts and prayers!
Ashley
Below is a photo of Maddison today, Feb. 23rd with her chest closed.
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